Maybe it’s *not* HO after all.. And back to popping wheelies
So after all my concerns about the swelling in my leg being due to HO (Heterotopic Ossification), it turns out it might not have been after all. But we’re still not 100% sure yet. I was sent for a CT scan last week after the swelling hadn’t changed at all over the weekend, and the results were surprising – my leg is filled with blood.
That may seem to be troubling, but it’s not as bad as it sounds. Dr. Stein believes it was caused by either over-stretching or a particular exercise I may have been doing on the mat. This makes sense, as after the initial swelling occurred I felt that the stretching I was doing may have impacted the subsequent overnight increased swelling. The bleeding was compounded by my being on Coumadin as a preventative measure for DVT. Essentially, a small tear in the area of the quadriceps resulted in a lot of blood slowly leaking into my leg. This was supported by a concomitant decrease in hemoglobin and hematocrit levels. Basically, blood tests confirmed that there had been some leakage of blood internally.
Since then, I’ve been taking it easy in therapy and with the stretching. I was taken off Coumadin temporarily while we waited to be sure the blood had clotted successfully – it has. My leg is still quite swollen, however it has started to become less firm (for lack of a better way to describe it). Hopefully as it has gotten softer and feels more like a normal leg, it will start to shrink as well. Not too much as of yet, but my body should slowly reabsorb the blood over the next couple weeks.
In other news, I finally got the good TiLite wheelchair back last Wednesday night. The manufacturer had managed to finally repair/replace the footplate that I managed to break two weeks prior. They said they’d never seen that type of damage before and were almost in awe. Hey, I always have to do something nobody’s done before, right?
And of course, what’s the first thing I did after getting back into a good chair but start popping wheelies again. I haven’t missed a beat, and my wheelies are even more stable now than they used to be. I can turn in a wheelie much easier than before, and I’m now working on consistently going off curbs in a wheelie. It sounds risky, but it’s actually safer than the alternatives. Learning how to control a wheelie and use it to your advantage is one of the best things that can be done for overall safety. But it does have to be done in a controlled environment, because it’s still something that takes care and caution to learn. And I’m still a complete and utter beginner who realizes how careful they need to be. But damn, they’re fun.
It’s amazing how much being in a better chair impacts one’s sense of independence. The chair is so much more comfortable. And more importantly, it’s much easier to propel myself around and to navigate obstacles. I feel more up to going out and about, and to challenging myself. This alone makes me more apt to socially integrating myself outside the hospital setting.
On Friday night, I went out to dinner with my girlfriend at Hanratty’s, a nearby restaurant that we tend to frequent a lot. It’s close, the food is quite good, and they’re very friendly to wheelchair patrons. They even have a little ramp they bring out in order to make it easy to get past the curb they have at their door. The entire trip out was without incident, and it felt really good to be outside of the hospital in a normal setting again.
There are still a few issues to resolve before I’ll be ready to be discharged, but the date is approaching. My tentative release is re-evaluated every week, and the next evaluation will be tomorrow. So tomorrow I should have a better idea of when I might be out of here. Granted, based on history, it could be “a week or two” and then again get moved back. Which would be good, because I’m not quite ready to leave yet. But I’m getting closer and closer to being ready every day.
4 comments
You always seem to amaze me. I am so glad you are doing better and back in your normal chair. I am even happier for you that you are getting out once in a while and enjoying some things outside of the hospital. Take care of yourself and I hope I get to see you and your lady real soon!
obviously, we are all anxious for you to be able to manage on your own. But hang in there, you can learn a lot while you’re in the hospital setting. Even wheelies in moderation is something of a milestone to accomplish. Those of us on the outside have little or no chance of successfully doing such a thing (unless we are medical personnel and have had some basic training).
We love knowing you are doing your upmost to manage this situation and we have lots of confidence that you will arrive victorious on the other side of any challenge.
Lots of love and support…Aunt Jane
I know I’m dumping a lot of comments on you all in one night, but I’ve had a lot of catching up to do.
I know what you mean about the ginormous leg. I had an infection after my surgery a year ago, and I got to experience SLS (Sausage Leg Syndrome).
Let me ask you a blunt wheelchair question: does your butt hurt? Mine sure got tired of it.
Dump away… Your comments and links are more than welcome.
RLS is probably one of the funniest of the recent “conditions” to become well known. I’m sure it can be a problem for some people, but it just sounds completely made up. Fortunately my SLS has subsided significantly. The feeling is getting closer to that of the left leg, but it’s not all the way there yet.
Does my butt hurt? Well, that’s actually one of the most critical issues for SCI patients to be cautious of. Pressure sores. Fortunately since I’ve got sensation below my level of injury, I can feel when pressure builds up in the butt region (hardcore medical terminology). Because many people here don’t have that type of sensation, we’re told to do pressure reliefs every 20 minutes while in the chair. It’s as simple as bending at the waist while in the chair, so the butt lifts up as a result. Or leaning to each side for a minute.
Gotta save the butt skin.
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